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• Alicia's journey with a DIPG

About Us

• In the Beginning
• Medical Advisory
• Privacy Statement
• Advertising Policy
• Accreditations
• Special Thanks
• Consent Form

Understanding Pontine Gliomas

• What is a glioma?
• Where is the pons?
• What does the pons do?
• What are the typical symptoms?
• What does a pontine glioma look like?
• What else should I know about DIPG?

Treating Pontine Gliomas

• Surgery
• Radiation
• Radiosensitizers
• Chemotherapy
• Clinical Trials
• Clinical Trials for Newly Diagnosed
• Tyrosine Kinase Inhibitors
• Steroids
• Xerecept
• Adrenal Insufficiency
• Blood Counts
• Central Lines
• Imaging
• Nutrition & Supplements
• Complementary & Alternative Medicine
• Palliative Care & Hospice

Research

• Tumor Tissue Analysis
  • Introduction & Current Research
    • Children's National Medical Center
    • Memorial Sloan Kettering Cancer Center
    • National Institutes of Health
    • St. Jude Children's research Hospital
    • The Hospital for Sick Children
    • University of California, San Francisco
  • Research Funding
  • Dear Doctor Letter
  • Frequently Asked Questions
  • Personal Experience
• Imaging Research
• Biopsy
• Hurdles for DIPG Research

Parent Pointers

• Top Tips
• DIPG Children
  • DIPG Children
  • DIPG Angels
  • Memorials & Special Thoughts
    
• Compassionate Use Program
• Anatomic Terms
• Resources
  • Online Support Groups
  • Helpful Websites
  • Hope for a Smile
  • Personal Care
  • Travel
  • Genetic Testing
  • Cancer Centers
  • Professional Organizations
  • Other Foundations
  • Tips for Family & Friends
  • Bereavement
    • Siblings
    • Twins
    • Parents
    • Grandparents

DIPG Conference

• DIPG a Clinical Introduction - Cruz
• Clinical Trials/Biopsy - Hargrave
• Origin of Brainstem Tumors - Pons
• Molecular Gliomagenesis - Seoane
• Molecular Medicine for DIPG - Kieran
• Murine Animal Models/Drug Delivery - Roussos
• Clinical Trials from St. Jude/PBTC - Broniscer
• Clinical Trials at Duke - Gururangan
• Gene Therapy Strategies - Ramirez
• Novel Therapeutics and Targeted Delivery - Caretti/Van Vuurden

DIPG Dialogue

• Dr Zagzag July 2009
• Dr. Rahman June 2009
• Dr. Ohlfest May 2009
• Dr. Yang April 2009

DIPG Digest

• August 2009
• July 2009
• June 2009
• April 2009
• March 2009
• February 2009
• January 2009
• December 2008

Advocacy

• Position Statements
• Grassroot Campaign
• S. 305 National Childhood Brain Tumor Prevention Network Act of 2009
• H.R. 653 National Childhood Brain Tumor Prevention Network Act of 2009
• Letter to Congressional Representative and Senator
• Letter to State Respresentative and Senator
• State Resolutions to Support S. 305 and H.R. 653

How You Can Help

• News & Events
  • Childhood Cancer Letter
• To Honor & Remember
• Families Making a Difference
  • The Adams Family
  • The Agin Family
  • The Garcia Family
  • The Gillespie Family
  • The Hauschildt Family
  • The Hines Family
  • The Klein Family
  • The Martin & Stys Family
  • The Sharp & Siemann Family
  • The Smith Family
  • The Spady Family
  • The Willaert Family
• Alicia's Angels
  • Those who are Alicia's Angels
• Our Donors
• In Kind Donations
• Matching Gift Program

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